Association for Multiple Endocrine Neoplasia Disorders

  • 1
  • 2
  • 3
  • 4
  • 5
  • 6
  • 7

Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

Send Email

Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

Visit group

Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

Donate today

Latest news stories:

AMEND is pleased to bring you our latest publication: 'Starting a Family: Your Choices'.  Funded by a grant from the Society for Endocrinology, this publication aims to provide an introduction to the different conception options available to someone with MEN, and some of the practical, physical and emotional aspects of each of these. We also signpost you to sources of additional information, support and advice.  Download for free or order a free hard copy if you are a registered patient member of AMEND.

'An excellent resource'

'Looks and reads as a very comprehensive addition to patient support'

Click here to visit the webpage and download the book for free

Please join us for our free patient information event on Saturday 6th May in Central Manchester!

All those affected by multiple endocrine neoplasia (MEN), succinate dehydrogenase syndromes (SDHx) and adrenocortical cancer (ACC) are invited to this popular day-long event to listen to some fascinating talks and participate in some useful workshops.  Sessions include those on Transition, Understanding Research Articles, Using Social Media for Support, as well as patient experiences and an overview of genetic counselling.

Refreshments, lunch and a creche are all available for free.

Click here to learn more and to book your place(s)!