Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Join our private group here where fellow patients and professionals share their experiences and support.

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Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

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Latest news stories:

AMEND is pleased to bring you our latest publication: 'Starting a Family: Your Choices'.  Funded by a grant from the Society for Endocrinology, this publication aims to provide an introduction to the different conception options available to someone with MEN, and some of the practical, physical and emotional aspects of each of these. We also signpost you to sources of additional information, support and advice.  Download for free or order a free hard copy if you are a registered patient member of AMEND.

'An excellent resource'

'Looks and reads as a very comprehensive addition to patient support'

Click here to visit the webpage and download the book for free

On Saturday 6th May in Central Manchester, we held our 2017 Annual Patient Information Day.

All those affected by multiple endocrine neoplasia (MEN), succinate dehydrogenase syndromes (SDHx) and adrenocortical cancer (ACC) were invited to this popular day-long event to listen to some fascinating talks and participate in some useful workshops.  Sessions included those on Transition, Understanding Research Articles, Using Social Media for Support, as well as patient experiences.

The filmed presentations are now available to view on our YouTube Channel (AMEND3). Click here to view the playlist.

We are already taking bookings for our 2018 Information Day on 12th May in London. Click here for more information and to book!