Association for Multiple Endocrine Neoplasia Disorders

Regulatory Information

As a UK registered charity (non-profit organisation), AMEND is regulated by the UK government's Charity Commission and produces annual reports and accounts.  It does not receive government funding.


AMEND USA is affiliated with AMEND (UK) but is a US tax exempt 501(c)(3) non-profit public charity itself (IRS number 90-0885351). If you are interested in being involved with this organisation, please do contact the main representative directly.



Mrs Jo Grey


Board of Trustees

AMEND has a Board of Trustees (Directors) which includes patients, healthcare professionals and other interested parties with specific qualifications. It is the Board's responsibility to set the organisation's strategy and to ensure that the charity operates in compliance with the laws of the United Kingdom.

Interested in becoming a Trustee? Just contact us for a chat!

Our Current Trustee Board (as at 8 May 2016):

Mr Barney Harrison



Mr Barney Harrison 
MBBS, MS, FRCS Eng, FRCS Edinburgh (Consultant Endocrine Surgeon - retired) Past President BAETS

Mrs Catherine Hamilton-Woodthorpe



Mrs Catherine Hamilton-Woodthorpe, BSc, FCA
(AMEND Treasurer)

Gill Underhill



Mrs Gill Underhill
(MEN1 Representative)

Karim Meeran



Professor Karim Meeran
BSc, MBBS, MRCP, MD, FRCP (Consultant Endocrinologist, London)
Clinical Excellence Award Winner

Dr Simon Williams



Dr Simon Williams

Ms Edel Murphy



Ms Edel Murphy
(MEN2b/Ireland Representative)

Mrs Laura Jones



Mrs Laura Jones

     Mrs Louise Breen, RN

   Joel Russell-Winter


AMEND Medical Advisory Team (AMAT)

AMEND takes its responsibility of supplying accurate information to patients very seriously.  As such, the AMEND Medical Advisory Team are imperative to the production of our patient resources such as our website and patient information books.  All our advisors give their time freely and AMEND is very grateful for their help and commitment.

Note: AMEND is not allianced with any one particular medical facility and tries to ensure that its advisors are geographically spread in order to provide balanced opinion and information.

Click here to view the current members of our AMEND Medical Advisory Team

AMEND is a member of the following organisations: