Saturday 14th October 2017
Hastings Europa Hotel, Great Victoria Street, Belfast
Come and enjoy this FREE, small and informal AMEND Roadshow meeting.
You will have the chance to meet other patients, meet members of the AMEND team, and quiz our visiting medical expert (tbc)
"AMEND Roadshows are a life-saver. They provide fantastic and clear information and radically reduce feelings of panic and isolation that goes with a rare disease" [patient]
For all those affected by Multiple Endocrine Neoplasia, SDH disorders and Adrenocortical Cancer.
FREE day of informative talks and plenty of networking and social time to get to know other patients.
Programme to be decided in early 2018
If you're interested in speaking about your experience as a patient to a friendly room of other patients, please do contact Jo in the office.
If you are a medical specialist or researcher who would be interested in coming along and speaking on a relevant topic, please also contact Jo in the office.
"Brilliant day and so well organised. Thrilled to have been able to attend. Topics so relevant and make you feel in control of your condition. Thank you."
We know you will gain a great deal by becoming a member of AMEND, so welcome!
Please rest assured that AMEND takes patient privacy extremely seriously and conforms with data protection laws. Your details are never shared with anyone without your express permission.
AMEND is very much guided on the production of our information resources by our Medical Advisory Team who are all experts in their fields.
Information about the medical disorders is based upon the following:
AMEND's medical information is written by an expert patient in order that it is easy-to-understand for a lay audience, and are amended and then approved by the AMEND Medical Advisory Team before publication.
In some instances, one or more specialist authors are asked to help produce resources. These resources also require authorisation by the AMEND Medical Advisory Team before publication.
Information resources may be updated when a relevant new national or international consensus guideline is published.
Webpages are reviewed on an annual basis to check for accuracy and necessary updates.
Printed resources are generally updated and reprinted every 3 years, although reprinting may vary according to funding constraints.
Whilst we try to select only the best sites with whom to link, AMEND cannot be held responsible for the quality of information on external sites.