Association for Multiple Endocrine Neoplasia Disorders

Where do we get our medical information from?

AMEND is very much guided on the production of our information resources by our Medical Advisory Team who are all experts in their fields.

Information about the medical disorders is based upon the following:

  • Thakker, RV, Newey, PJ et al, 'Clinical practice guidelines for multiple endocrine neoplasia type 1 (MEN1)', J Clin Endocrinol Metab. 2012 Sep;97(9):2990-3001
  • Brandi, ML, Gagel, R et al, 'Guidelines for diagnosis and therapy of MEN type 1 and type 2', J Clin Endocrinol Metab. 2001 Dec;86(12):5658-71
  • Perros, P et al, 'British Thyroid Association Guidelines for the management of thyroid cancer', John Wiley & Sons Ltd Clinical Endocrinology (2014), 81 (Suppl. 1), 1–122
  • Martucci, VL and Pacak, K, 'Pheochromocytoma and paraganglioma: diagnosis, genetics, management and treatment', Curr Probl Cancer 38 (2014), 7-41 Elsevier
  • Fassnacht, M, Arlt, W et al, 'Management of adrenal incidentalomas: European Society of Endocrinology Clinical Practice Guidelines in collaboration with the European Network for the Study of Adrenal Tumors', European Journal of Endocrinology 2016
  • Chahal, HS, Korbonits, M, 'Familial Isolated Pituitary Adenomas', US Endocrinology Touch Briefings, 2009
  • Relevant national and international consensus guidelines as they become available

What is our editorial process?

AMEND's medical information is written by an expert patient in order that it is easy-to-understand for a lay audience, and are amended and then approved by the AMEND Medical Advisory Team before publication.

In some instances, one or more specialist authors are asked to help produce resources.  These resources also require authorisation by the AMEND Medical Advisory Team before publication.

When is information updated?

Information resources may be updated when a relevant new national or international consensus guideline is published.

Webpages are reviewed on an annual basis to check for accuracy and necessary updates.

Printed resources are generally updated and reprinted every 3 years, although reprinting may vary according to funding constraints.