Association for Multiple Endocrine Neoplasia Disorders

AMEND has developed a variety of resources over the years to help educate and support patients and their families. All of our resources are provided free, though some may require registration:

AMEND Patient Information (for Adults and Children)

patient information booklets

A series of booklets on a variety of disorders and relevant topics. Produced with the help of the AMEND Medical Advisory Team or other qualified authors. AMEND's patient information resources are provided free of charge to all.

In 2014-2015 AMEND produced the first ever information resources for children on MEN1 and MEN2. A Medikidz comic book and a cartoon about each condition make a complicated subject accessible to children as young as 5 years old. Comic books are available for free on direct application to AMEND (and are sent as part of the AMEND Welcome Pack upon registration). The cartoons can be found on our children's webpage.

Click here to view our patient information

AMEND Newsletters


AMEND's newsletters are published in April, August and December each year and contain patient stories, research updates and much more. Latest newsletters are only available to registered members of AMEND – it's free to join!

Click here to view back issues of newsletters


Click here to join AMEND


Patient Films

Thanks to member and cameraman, Andy Smith, AMEND has produced 2 website films featuring patients and medical experts discussing life with MEN1 and MEN2. During 2012 these films are being developed into a training DVD for medical schools.

Thanks go to Andy Smith of Firstsight Communications for the production of these short films.


In addition, presentations from our Annual Patient Information Days are often filmed and uploaded to our YouTube Channel, AMEND3. Click here to view the channel and its playlists.


AMEND Counselling Service

Registered members of AMEND can benefit from our confidential counselling service. This can be done by telephone or by email in the case of some of our international members outside of the UK. AMEND's counsellor, Kym Winter is a qualified counsellor with 15 years' experience. Click here for more information on AMEND's Counselling Service. Contact details for Kym are provided on registration.

Click here to join AMEND


AMEND Social Media Groups

AMEND uses Facebook a great deal to connect people from around the world with MEN.  Email invitations to join our private members-only groups are sent upon registration. In addition, you may find our public Facebook Page to be useful and informative. If so, please do 'Like' us!

Visit our YouTube Channel to view all our videos, including Annual Patient Information Day presentations, free emotional well-being resources, children's cartoons and other videos of interest.

If you are more of a Twitter fan, then follow @AmendInfo there too!


Links to other useful organisations

AMEND maintains links and works cooperatively with many organisations around the world for the benefit of all patients. Visit our Useful Links section to explore these.