Association for Multiple Endocrine Neoplasia Disorders

AMEND Counselling Service Frequently Asked Questions (FAQs)


1. What sort of things can I make contact about?

Here at AMEND we believe that anything that is interfering with your ability to live as well as possible with your condition can benefit from talking through. Sometimes talking with someone outside the circle of family or friends (who you might otherwise talk to) can help you find another perspective, a new way forward, or share things it might otherwise not be easy to talk about. Some of the issues that people seek help with are:

•          Coming to terms with a diagnosis – feeling frightened, angry or isolated

•          Feeling anxious or depressed

•          Dealing with your medical team

•          Relationships with your partner, or other family members

•          Coping with difficult symptoms or treatment

•          Impact on your family

•          Fears about the future

•          Talking to children about the condition

•          Thinking about having children

•          Managing work


2. How can counselling help?

  • By providing a reliable and confidential place to speak about what is worrying or upsetting you
  • By offering support
  • By offering a safe space, free from the pressures of other relationships
  • By helping you find a way through particular difficulties, dilemmas or situations
  • By talking to someone who already has an awareness of your condition and its potential impact
  • By helping you deal with difficult feelings


2. How long will a session last?

A session is usually 50 minutes but if you are having problems with tiredness/fatigue or receiving treatment, then a shorter session is also an option.


3. How many sessions can I have?

Sometimes just a few sessions can make a big difference, sometimes a number of weekly or fortnightly sessions over a period of time is helpful. Sometimes even just one session can be what’s needed, and we can discuss what feels most helpful for you as an individual we go along.



3. I do not live in the UK. Can I still access AMEND Counselling?

I  can also offer sessions through SKYPE or Facetime. It’s usually easiest to make contact by email initially to talk through logistics, time zones etc.



4. I would prefer face-to-face counselling. Is this possible?

Yes, if you are within travelling distance of my consulting rooms in St Albans, Hertfordshire. I am about 20minutes by train from Kings Cross St Pancreas and a short taxi ride (approx. £5) / 25minute walk from St Albans City station. If you would like to talk to someone face-to-face in your local area, or would find it helpful to access additional local services, I can also help you find an accredited counsellor near where you live.



5. Will I have to pay anything?

No. AMEND Counselling Service is free to members.


6. Is there any information online about how to deal with things that are bothering me?

The AMEND website has a section under Patient Resources which address  issues such as Understanding your Condition, Living with Uncertainty and Dealing with Diagnosis. There are also a number of videos with titles such as ‘Looking after Emotional Wellbeing’, ‘Mindfulness’ ( a particular technique to help deal with stress, anxiety etc.) and patient stories. There is also an active Facebook community for each MEN/related condition.


7. Do I need to do anything before I call/email?

It helps to be able to speak in a comfortable, quiet place where you feel you can speak freely without being overheard or distracted. If we arrange further sessions it is usually helpful if they can be at the same time each week, so giving some thought in advance to when you are going to be available is useful.


8. Do you have a waiting list?

I try not to keep a waiting list and usually I am able to get back to you within 48hrs (Mon-Fri) to arrange an appointment. If you email me and do not hear back within that time, do let me know on 01727 752147.


AMEND's Counselling Service is available for free to AMEND members.  To benefit, please click here to join AMEND.