Association for Multiple Endocrine Neoplasia Disorders

AMEND is pleased to bring you our latest publication: 'Starting a Family: Your Choices'.  Funded by a grant from the Society for Endocrinology, this publication aims to provide an introduction to the different conception options available to someone with MEN, and some of the practical, physical and emotional aspects of each of these. We also signpost you to sources of additional information, support and advice.  Download for free or order a free hard copy if you are a registered patient member of AMEND.

'An excellent resource'

'Looks and reads as a very comprehensive addition to patient support'

Click here to visit the webpage and download the book for free

On Saturday 6th May in Central Manchester, we held our 2017 Annual Patient Information Day.

All those affected by multiple endocrine neoplasia (MEN), succinate dehydrogenase syndromes (SDHx) and adrenocortical cancer (ACC) were invited to this popular day-long event to listen to some fascinating talks and participate in some useful workshops.  Sessions included those on Transition, Understanding Research Articles, Using Social Media for Support, as well as patient experiences.

The filmed presentations are now available to view on our YouTube Channel (AMEND3). Click here to view the playlist.

We are already taking bookings for our 2018 Information Day on 12th May in London. Click here for more information and to book!

NET Cancer Day will be upon us once again on 10th November.

This year's theme is 'Let's Talk About NETs' and there are plenty of ways to get involved to help raise awareness of the neuroendocrine tumours (NETs) that are involved in multiple endocrine neoplasia (MEN).

Click here to visit our webpage and find out more!

Don't forget to follow us on Facebook and Twitter on the day

We are delighted to announce that Professor Maralyn Druce has joined AMEND's Medical Advisory Team.

Professor Druce, a consultant endocrinologist from St Bartholomew's Hospital in London has special expertise in medical education and we know that she will be a great addition to our wonderful team.

Click here to learn more about Professor Druce.

 

This year, for the first time, AMEND has signed up to The Big Give Christmas Challenge.

We are aiming to raise a total of at least £7,000 to fund a project to develop digital resources for young people (aged 16-25) about the issues they face living with MEN.

The money will be raised by a combination of Pledges which will match-fund any general donations received during a short 72-hour window from midday 29th November to 12pm on 2nd December.  If we're really lucky, The Big Give organisation's Champions may additionally match donations, meaning that your donation could be doubled or even quadrupled!

To learn more about becoming a Pledger or Donor for our campaign, and for more details about the project itself, please visit our webpage.

Central Manchester 10:00-17:00

Education and friendship

Click here to book your place

 

Films of the main presentations at AMEND's recent Annual Patient Information Day are now available to view.

These include the basic sessions on MEN1 and MEN2, as well as talks on family planning, steroid dependency in MEN2 and pancreatic tumours in MEN1.

Click here to go to the webpage.

Huge thanks to Andy Smith from Firstsight Communications Ltd for free filming services.