Association for Multiple Endocrine Neoplasia Disorders


AMEND's December newsletter was emailed to members this morning.  Postal newsletter expected next week.

Learn about sporadic medullary thyroid cancer in this edition's My Story, as well as potential affects on membership from new data protection regulations.  Meet Dave the office Beagle, and find out how we're planning to celebrate our 15th birthday in 2018.

Not a member? Click here to register now!



Come and join us for the weekend of 29th June when the AMEND team will be tackling the Yorkshire 3 Peaks Challenge!

This will surely be a memorable event with your fellow AMEND members and friends, all in aid of AMEND's Research Fund.

Get your walking boots on and visit our webpage for more information!

This event is organised by award-winning Discover Adventure.  A minimum fundraising target applies.



We are delighted to announce that Professor Maralyn Druce has joined AMEND's Medical Advisory Team.

Professor Druce, a consultant endocrinologist from St Bartholomew's Hospital in London has special expertise in medical education and we know that she will be a great addition to our wonderful team.

Click here to learn more about Professor Druce.


AMEND is pleased to bring you our latest publication: 'Starting a Family: Your Choices'.  Funded by a grant from the Society for Endocrinology, this publication aims to provide an introduction to the different conception options available to someone with MEN, and some of the practical, physical and emotional aspects of each of these. We also signpost you to sources of additional information, support and advice.  Download for free or order a free hard copy if you are a registered patient member of AMEND.

'An excellent resource'

'Looks and reads as a very comprehensive addition to patient support'

Click here to visit the webpage and download the book for free

Central Manchester 10:00-17:00

Education and friendship

Click here to book your place


On Saturday 6th May in Central Manchester, we held our 2017 Annual Patient Information Day.

All those affected by multiple endocrine neoplasia (MEN), succinate dehydrogenase syndromes (SDHx) and adrenocortical cancer (ACC) were invited to this popular day-long event to listen to some fascinating talks and participate in some useful workshops.  Sessions included those on Transition, Understanding Research Articles, Using Social Media for Support, as well as patient experiences.

The filmed presentations are now available to view on our YouTube Channel (AMEND3). Click here to view the playlist.

We are already taking bookings for our 2018 Information Day on 12th May in London. Click here for more information and to book!

NET Cancer Day will be upon us once again on 10th November.

This year's theme is 'Let's Talk About NETs' and there are plenty of ways to get involved to help raise awareness of the neuroendocrine tumours (NETs) that are involved in multiple endocrine neoplasia (MEN).

Click here to visit our webpage and find out more!

Don't forget to follow us on Facebook and Twitter on the day