Association for Multiple Endocrine Neoplasia Disorders

AMEND's UK Annual Information Day in 2015 will be held at the Thackray Medical Museum in Leeds, North Yorkshire on Saturday 9th May.

There will be something for everyone, including a creche for the younger family members and special information sessions and activities for the teenagers.  A range of basic to advanced information sessions for adults on multiple endocrine neoplasias 1, 2a and 2b will occupy our morning, with our popular Ask the Expert Panel session in the afternoon.  There will be plenty of time for socialising with fellow patients, carers and AMEND staff and volunteers throughout the day as well as an additional opportunity to attend an informal dinner in the evening.

We do hope you can join us for our popular free event at this fascinating venue.

Click here to learn more and book your spaces now!


AMEND's December members' newsletter is now available to view in the Resources section of our website.  You must log on to access this.  If you are not already a member, you can join for free by clicking here.

This quarter, there is news about AMEND's 2015 Research Awards, information from a variety of events in the UK and USA, research updates, fundraising updates, and an MEN2b My Story.  As ever, there is also much, much more....

We hope you enjoy reading your newsletter!

Thyroid cancer is being diagnosed in greater numbers than ever before.

Differentiated thyroid cancer can affect anyone in the general population and if found early, can often be treated successfully.

Undifferentiated medullary thyroid cancer affects people with MEN type 2 and treatment differs from that for other thyroid cancers.

Find links to further information and advice on what you can do, including Check Your Neck, on our webpage.

Thanks to the generosity of the Organising Committee, AMEND were privileged to be able to attend the 2014 International Scientific Workshop on MEN in the beautiful city of Vienna in Austria at the end of September.  It provided a fantastic opportunity to continue working with our European patient group colleagues on behalf of the European MEN Alliance (EMENA).

We have now produced a lay summary of some of the most interesting research presented at the meeting.  The summary has been reviewed by the AMEND Medical Advisory Team.

Click here to read the summary.

Dutch research just published in the New England Journal of Medicine has found that women with MEN1 have a higher risk of developing breast cancer, and at an earlier age, than those without the genetic mutation.

Lead researcher and endocrinologist, Dr Gerlof Valk from UMC in Utrecht said the findings support discussions regarding regular breast screening in women with MEN1.

UMC Utrecht Cancer Center oncologist, Professor Dr Elsken van der Wall stated: "It is important that women with the MEN1 syndrome now know that they have to be aware that they run the risk of developing breast cancer, because early treatment is always better."

Read the entire accessible press release here.

Read the NEJM medical publication here.

The latest AMEND newsletter for members is now available to view on this website.

As usual it is packed with exciting news, project updates, My Story and much more!

Members are reminded to log in first to view the latest newsletter.

Membership is free if you have not yet joined.

We hope you enjoy reading this latest edition.

Dr John Ayuk will be the visiting expert at AMEND's UK Roadshow meeting on Saturday 13th September in central Birmingham.

Dr Ayuk is a Consultant Endocrinologist and Honorary Senior Lecturer at the University Hospital Birmingham, with special interests in pituitary and neuroendocrine tumours and MEN.

AMEND Roadshows are small informal afternoon meetings with free light lunch and refreshments, and provide a great opportunity to meet the team, explore AMEND resources, and get those burning questions answered.

Learn more and book your place now!