Association for Multiple Endocrine Neoplasia Disorders

The latest newsletter is now available for members to view.  It is rather late since AMEND has as usual been so busy!

Read all about the Annual Patient Information Days in both the UK and USA, our 2014 Research Award winner, and a US-based MEN2a My Story from Becky MacKenzie.  There is also another gorgeous recipe from our 'resident' published cook, Andrea.

We do hope you enjoy reading this quarter's offering.

Don't forget to log in first!

Click here to read the newsletter.

Congratulations and massive thanks to our 2014 team of British 10k London runners who ran on Sunday 13th July to raise money for AMEND, some in memory of lost loved ones.

Some of them are real gluttons for punishment as they were also members of our 2013 Team too!

Collectively, the team has already raised over £5,600 for AMEND which is fabulous.

Read more here and please do sponsor them if and while you still can!

Members can now login and read the 44th AMEND Newsletter!

This quarter, we celebrate the launch of our MEN1 and MEN2 Comics, produced as a result of 'Project Superhero!'.  There is also news of a plethora of events especially for patients (in the UK and the USA), our Rare Disease Day Roundup, lots of research news including AMEND's own into organ donation.  Professional cook Andrea provides us with another gorgeous recipe, and Laura shares her story about MEN1.  Finally, Debbie shares her beautiful tribute to her husband Chris Murray.

We are always pleased to receive your feedback on what you'd like to read, or for your own stories, so feel free to get in touch!

Please log on to read the newsletter.

Carla Sweetman took fundraising to extremes on May 4th by throwing herself out of a 'plane in aid of AMEND!

Read more about her plunge towards the earth here.

Thank you Carla!

The first resources developed as a result of AMEND's 'Project Superhero!' are now available FREE to all patients and families affected by MEN1 or MEN2a/2b.

These beautiful, colourful and exciting publications, each 32 pages long, follow the stories of two real children, Rueben and Cameron as they learn about MEN1 and MEN2 respectively.

The AMEND-funded comics have been produced to help aid open and easier discussion about MEN within families affected by MEN as well as between the children and their healthcare team.

All registered AMEND members will automatically receive a copy.

To learn more about 'Project Superhero!' and the comics, and to order a FREE copy yourself, please visit our webpage.

Our heartiest congratulations go to AMEND Patron and Medical Advisory Team member, Professor Raj Thakker from the University of Oxford who was made a Fellow of the Royal Society on 30th April 2014.

Professor Thakker joins the likes of Stephen Hawking, Jocelyn Bell Burnell and Richard Dawkins as one of around 1400 Fellows, which also include around 80 Nobel Laureates.

The Society's Fellows are its backbone and are elected for life by a peer review process on the basis of excellence in science.

You can read more about Professor Thakker FMedSci, FRS here.

 

Today, Friday 28th February, is International Rare Disease Day!

AMEND members from around the world are showing their solidarity by joining hands in a collage of smiles!

It's never too late to join in and raise awareness of rare diseases like multiple endocrine neoplasia.  Just send us your photo.

Click here to view the collage