Association for Multiple Endocrine Neoplasia Disorders

Dutch research just published in the New England Journal of Medicine has found that women with MEN1 have a higher risk of developing breast cancer, and at an earlier age, than those without the genetic mutation.

Lead researcher and endocrinologist, Dr Gerlof Valk from UMC in Utrecht said the findings support discussions regarding regular breast screening in women with MEN1.

UMC Utrecht Cancer Center oncologist, Professor Dr Elsken van der Wall stated: "It is important that women with the MEN1 syndrome now know that they have to be aware that they run the risk of developing breast cancer, because early treatment is always better."

Read the entire accessible press release here.

Read the NEJM medical publication here.

Dr John Ayuk will be the visiting expert at AMEND's UK Roadshow meeting on Saturday 13th September in central Birmingham.

Dr Ayuk is a Consultant Endocrinologist and Honorary Senior Lecturer at the University Hospital Birmingham, with special interests in pituitary and neuroendocrine tumours and MEN.

AMEND Roadshows are small informal afternoon meetings with free light lunch and refreshments, and provide a great opportunity to meet the team, explore AMEND resources, and get those burning questions answered.

Learn more and book your place now!

Carla Sweetman took fundraising to extremes on May 4th by throwing herself out of a 'plane in aid of AMEND!

Read more about her plunge towards the earth here.

Thank you Carla!

The latest newsletter is now available for members to view.  It is rather late since AMEND has as usual been so busy!

Read all about the Annual Patient Information Days in both the UK and USA, our 2014 Research Award winner, and a US-based MEN2a My Story from Becky MacKenzie.  There is also another gorgeous recipe from our 'resident' published cook, Andrea.

We do hope you enjoy reading this quarter's offering.

Don't forget to log in first!

Click here to read the newsletter.

Our heartiest congratulations go to AMEND Patron and Medical Advisory Team member, Professor Raj Thakker from the University of Oxford who was made a Fellow of the Royal Society on 30th April 2014.

Professor Thakker joins the likes of Stephen Hawking, Jocelyn Bell Burnell and Richard Dawkins as one of around 1400 Fellows, which also include around 80 Nobel Laureates.

The Society's Fellows are its backbone and are elected for life by a peer review process on the basis of excellence in science.

You can read more about Professor Thakker FMedSci, FRS here.


Congratulations and massive thanks to our 2014 team of British 10k London runners who ran on Sunday 13th July to raise money for AMEND, some in memory of lost loved ones.

Some of them are real gluttons for punishment as they were also members of our 2013 Team too!

Collectively, the team has already raised over £5,600 for AMEND which is fabulous.

Read more here and please do sponsor them if and while you still can!

Members can now login and read the 44th AMEND Newsletter!

This quarter, we celebrate the launch of our MEN1 and MEN2 Comics, produced as a result of 'Project Superhero!'.  There is also news of a plethora of events especially for patients (in the UK and the USA), our Rare Disease Day Roundup, lots of research news including AMEND's own into organ donation.  Professional cook Andrea provides us with another gorgeous recipe, and Laura shares her story about MEN1.  Finally, Debbie shares her beautiful tribute to her husband Chris Murray.

We are always pleased to receive your feedback on what you'd like to read, or for your own stories, so feel free to get in touch!

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