Association for Multiple Endocrine Neoplasia Disorders

Young Jack's family is affected by MEN1.  As part of his school course work, Jack had to organise a fundraising event.  Luckily for us, Jack has chosen to support AMEND in his challenge, a 10k kayak!

I hope you will support Jack by sponsoring him at

Thank you and good luck Jack!

We look forward to hearing how you got on.


We invite you to meet the 'one and only' Matt Jones, who is our solo runner in the 2014 London Marathon!

Matt will be running to raise funds for AMEND on 13th April and will be posting occasional light-hearted videos of himself and his training efforts.

View his first offering now in which he introduces himself and why he's decided to do something so energetic for AMEND!

Please support him if you can.

Click here to learn more

Thank you to everyone who has supported AMEND this year, whether it be financially or by volunteering.  You all help to make AMEND the successful and caring organisation it is.

This festive season we remember so many of those who are no longer with us and our thoughts go out to all their families and friends.

Jo in the UK, Vickie in the USA and Siobhan in New Zealand, together with all the Board Members and volunteers wish all our members and friends a peaceful Christmas and a Happy New Year.

The UK office will be closed between Monday 23 December and Tuesday 7th January while we move office; however we are all still contactable through the Contact Us Page.

Look forward to seeing you all in 2014!


AMEND's 12th Annual Information Day is going to the zoo!

Got kids?  No problem!  Teenagers can join in with specially tailored sessions and younger kids will be supervised by fully qualified and checked childcare staff from The Mobile Creche Company.

All kids, teens and the young at heart have free access to the zoo all day (younger children will be supervised).

This year's sessions include Basic MEN and Advanced MEN sessions including patient experiences, advice on emotional well-being from AMEND's own qualified Counsellor, and an Ask The Expert Q&A.

There's plenty of social time and an optional evening meal making this a great event for all the family, and just what the doctor prescribed.

You can be that Expert Patient!

Visit our webpage for more details on the programme and for our online booking system for the Information Day and childcare.

See you there!

Registered members may now log in to view the latest newsletter from AMEND.

This quarter sees the newsletter get a new fresh look and as usual it is packed with information.

There's an MEN1 My Story, project update news, research news, a round-up of this quarter's events and a whole lot more!

Check out our new Cookery Corner feature too.

As always, we value your feedback and contributions.  So if there's something you would like to see us include in the future, or you would like to contribute yourself, we would love to hear from you.

Not a member?  No problem!  Just register for free now, and in addition to being able to view latest newsletters, you will receive your free membership pack including our MEN Passport (where appropriate).  Join Now!

We hope you will join us in welcoming Helen Blakebrough to the AMEND team.  Helen will be working in the UK office on a part-time basis as Personal Assistant to CEO, Jo, and as Office Administrator.

"My background is in office, operations and event management. I have been a busy mother of 2 young children for the past few years and am very excited about returning to work and the challenges ahead working for AMEND. I believe I can draw on my event and operations experience to assist in the smooth running of the charity and its upcoming events."

Helen will be taking on responsibility for sending out the Member Welcome Packs,  for maintaining AMEND's membership and research databases and for event organisation, among other things.

You'll be seeing Helen around during 2014 for sure!

You can contact Helen through the Contact Us Page.

We are delighted to be able to invite patients to attend a Society for Endocrinology professional medical Symposium on Friday 6th December, in London.

Thanks to AMEND Trustee, Professor Karim Meeran and the rest of the organising committee, you are invited to attend the main professional sessions on pituitary and parathyroid issues and/or the parallel patient sessions on pituitary function testing and emergency steroid injections.  In addition, there will be a general Ask the Doctor session for you to quiz an expert on any burning questions you may have.

We do hope you can join us at this fascinating event.

To find out more and to book a place, please visit our webpage.