Association for Multiple Endocrine Neoplasia Disorders

AMEND provides the opportunity for patients with MEN and related endocrine conditions to be involved in a variety of research projects.  We do this by offering ourselves as a link between researchers and patients.

To ensure that you are kept up-to-date with opportunities as they arise, please complete the AMEND Research Registry form document Research Registry Application (97 KB)

Researcher Feedback:

"Recruiting patinets to research trials is always a challenging process. This is even more challenging when researching rare diseases such as MTC… Innovations such as the AMEND Research Registry at AMEND have allowed patients to put themselves forward to be involved in research and provided a direct link between researchers and patients. In our project this has helped recruit more people and in a much faster timeframe than we could have hoped using traditional methods."