Association for Multiple Endocrine Neoplasia Disorders

Patient information

archive Patient Information Books

patient information booklets



We have published guides on all the MEN disorders as well as other conditions and aspects of the conditions.  Our aim is to help newly diagnosed patients gain a greater understanding of their condition and to provide reference tools for patients of all ages throughout their life.

Click on the category title to access the listed titles.



Folder Disease information books

  • MEN type 1 (UK)
  • MEN type 1 (USA)
  • MEN type 2a (now known as MEN2) (UK)
  • MEN type 2a (now known as MEN2) (USA)
  • MEN2b (now known as MEN3)
  • Familial Medullary Thyroid Cancer (FMTC)
  • Sporadic Medullary Thyroid Cancer (MTC)
  • Phaeochromocytomas & Paragangliomas
  • Familial Isolated Pituitary Adenoma (FIPA)
  • Adrenal Insufficiency (Society for Endocrinology)
  • Adrenocortical Cancer (ACC)


Folder Emotional Well-being Resources

  • Dealing with Diagnosis
  • Living with Uncertainty

Folder Information for families

  1. Starting a Family: Your Choices
  2. Talking to Children & Young People About MEN
  3. Employment and Returning to Work
  4. Choosing Your Medical Team
  5. Informed Patient Toolkit (Rarer Cancer Foundation)
  6. I've Got Nothing to Lose by Trying it (Sense about Science)

Folder Procedure information

  1. Whipple's Procedure
  2. Adrenal Surgery