Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

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Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

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Latest news stories:

AMEND charity Christmas cards are now available to buy through our web shop.  The four designs were produced exclusively for AMEND by our graphic designer and are simple yet striking.  A pack of 8 (2 of each design) costs £4 including UK postage and packing.  All proceeds go to AMEND to help us continue our work of informing and supporting families with MEN.  Visit the webshop now to order yours!

On Monday 7th September, we were thrilled to receive a Highly Commended certificate for our children's cartoons on MEN from the British Medical Association.

The certificate was awarded at a special ceremony of the BMA's 2015 Patient Information Awards at BMA House in Tavistock Square, London.

About our cartoons, the judging panel said, 'The animation has a strong visual identity and clear message.  The cartoon characters are amusing and support the message of the resource.  I liked the voices of the actors which were expressive and engaging.  Technical concepts such as cancer growth are explained clearly and succinctly.  The resource if fairly short but conveys a lot of information.'

AMEND creates high quality, easy-to-understand information adapted especially for patients (both adult and children) with the help of an expert medical advisory team.

This award is a fabulous recognition of all AMEND's hard work since the first resources were produced in 2005.

Watch our kids' cartoons here!