Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

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Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

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Latest news stories:

We are pleased to announce that our 2015 updated UK version of our popular Information Book on MEN2a is now available to download from this site.  The updated booklet now includes a glossary and many other improvements.

Click here to visit the webpage.

AMEND's latest newsletter (Issue 49) is now available to registered members to view and download on this site.  Please remember to log in!  Registration is free, so click here to become a member of AMEND and to access the latest newsletter.  Hear about our 2015 Summer Intern's experience, our 2015 Research Awards totalling £50,000, and much, much more.