Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Join our private group here where fellow patients and professionals share their experiences and support.

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AMEND is a entirely funded by donations so your contribution is extremely welcome.

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Latest news stories:

Films of the main presentations at AMEND's recent Annual Patient Information Day are now available to view.

These include the basic sessions on MEN1 and MEN2, as well as talks on family planning, steroid dependency in MEN2 and pancreatic tumours in MEN1.

Click here to go to the webpage.

Huge thanks to Andy Smith from Firstsight Communications Ltd for free filming services.

A record was broken at AMEND's 13th Annual Patient Information Day held in London on Saturday 7th May, when almost 100 participants gave up a day in the sun to learn about MEN and to socialise for mutual support.

A superb variety of talks were available from some excellent speakers.  Main talks were filmed as usual and will be available free to view via this website and our YouTube channel shortly.

Thank you to all who came, and all who were involved in the day and its organisation.

Click here to read more