Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

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Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

Donate today

Latest news stories:

We are thrilled that actor, Shaun Williamson, best known for his role as 'Barry' in Eastenders, has agreed to become a Patron of AMEND.  Kent-based Shaun has a cousin with MEN2a and visited the AMEND offices on Wednesday 27th April to find out more about the charity and the families whom we support.

Shaun commented, 'As a local, born and bred, it's an honour to be able to help a Kent-base charity which is doing such great work.'

We look forward to working with Shaun to raise awareness of AMEND and multiple endocrine neoplasia.  Watch this space....

Welcome to the team Shaun!

ONLINE BOOKING NOW CLOSED!

Saturday 7th May, Central London

This year, we return to central London for our popular Annual Patient Information Day where we will be looking at topics including:

  • steroid dependency
  • pancreas - surgery vs watch and wait
  • family planning
  • partners' & parents' session
  • emotional well-being

As usual, there will be a creche for the younger family members, and a Teen Forum session for those aged 13-18.

Attendance, refreshments and lunch are all free!

THIS EVENT IS ALMOST FULL AND ONLINE BOOKING IS CLOSED.

To enquire about last-minute registration, please contact Helen at the office.

Visit our webpage for more information

See you there!